January 13, 2012

Life as we know or knew it??!!!??

Life adding a third baby is not much different then I thought it would be. Constantly dealing with an overly helpful, independent 5 year old and an impatient loves routine 3 year old, and a great baby that likes to sleep and eat. Tired and loving it. We love our life.

Yesterday life as we knew or know it changed forever.
We got a phone call from my doctor....Ronan's new born screening had come back. His IRT testing for cystic fibrosis had come back positive. They did a second testing in the hospital that included genetic testing also. That came back positive.
I broke down. My perfect baby is flawed. NOOOOO.
Today we went and had a sweat test done to confirm diagnosis....it came back positive. We had a lot of people praying for us at that point. As I was sitting there listening to the nurses and such talking I wasn't crying for the first time in 24 hours and knew everything was going to be ok. God is in control. He loves Ronan and has a plan for him and us through this disease.

CF is a respiratory disease that is a lack of a certain enzyme in the lining of the lungs. The lack of that enzyme also leads to digestive issues also. They think this is part of the reason that Ronan is 2 and half weeks old and still hasn't reached his birth weight....but that doesn't say much...Zandria was the same way...my kids are just that way....lol.

So our life is going to change more than we thought it would. We do not know exactly what it will all entail yet....but we know that it will be a change and challenging at times. We know that the first steps will be vitamins and a saline intake. There is a CF clinic at RUH and a whole team of professionals to help make this easy on us and to show us that this is not the end of the world.

We know that we love our little boy and so does God. God has a plan and we have faith in His plan.

3 comments:

Anonymous said...

Thanks for sharing. We love you all. We will keep praying.

Mrs. Wilson said...

Wow, Venessa, I'm so sorry that your little guy received that diagnosis. I know, though, that God is in control and does have a plan for Mr. Ronan. We will definitely keep him (and you guys) in our prayers.

Jess said...

Praying and will continue to pray... hugs!