March 1, 2013

Todays appointment

today was his appointment that i have been dreading since his last appointment 
the one that involves putting him in a tube for x rays and poking him with a needle to get 5 viles of blood.  
more frightening than actually doing those thing physically are the results. 

on monday I mentioned to a friend that works at the hospital that I would be there today and she should stop by and say hi.  well after I get Ronan registered and halfway down to x ray i run into her and she informs me that she is going to hangout with me for duration of his appointment. 
This gave me such relief. Someone to help keep my mind occupied while we spend a lot of time waiting. Thank you soooo much. 

Well here are the stats 
Weight-24lbs 7oz
Height -29.6in (not much but fine. He did a lot last time)
His x rays were great. His lungs look awesome. Dr said pretty much equal to someone with a mild cold which is very good. :). 

I got to talk to everyone but the dietitian which is who I really wanted to talk to but that is ok. She had a family thing that she had to be at. We didn't get blood work back yet but the x rays is what I was afraid of. If things weren't clear then maybe nebulizers or something more to add to the routine. I am so relieved. 
God is good. Thank you so much for your prayers. I felt them and with the help of a friend I felt comfort. And so did ronan. Haha. He is soo funny. They put him in the tube for x rays and face him towards the wall he screams. They turn him to get his side and he can see the x ray techs and quiets down right away. He just wanted to see someone. 

It was just a good appointment. Thanks. 

February 28, 2013

an update but not

it is an update but not.
i have a lot of pictures and stuff to say but have yet to find the time to say it all and the patience to figure out the pictures.
it was just taking forever the other day and i just didn't think i had the time
but i felt the need to put it out there that Ronan has what they are calling his year cf check up tomorrow
it involves chest xrays, and blood work
xrays a year ago was alright...he screamed, but whatever
the blood work was bad a year ago....they couldn't find a proper vein and after the 5th try they went and got the guy that is really good at doing babies and he got what he needed in one poke and 10 seconds how do you ask for the big black lab tech please....not so politically correct. 
anyway just wanted to stay if you pray please pray. 
i am stressed about the whole situation and it just hit me yesterday that the results could be bad also....yesterday was not a good day.

January 13, 2013

One year

Sorry i am sucking at this blogging thing. 
I have a lot of blog posts I need to do, but won't get to it till after we are back from vacation
yes vacation without the kids to Cuba thanks to my parents...
Well here it goes. 
Ronan had a clinic appointment on the 10th
weight: 22lbs 13oz
height: 30in
O2: 99
Enzymes: 3 for a big meal 2 for small\snacks
He got a cold over Christmas and is on a antibiotic to clean up a cough that he had over 2 weeks.  pretty sure the extra mucus collected some sort of bacteria.
4 days into the antibiotic all of us except Zandria got a stomach bug
The stomach bug and the cold caused Ronan not to really gain weight, but he got taller.  Because he didn't gain weight but got taller he looks a lot skinnier and more like the other kids. 
Now on to the one year part.
Yesterday was the one year mark of when we got the phone call from our doctor. 
Bad parent that I am I couldn't remember the exact date until my mother in law reminded me that it was probably on the blog....sure enough there it was.  The day was no different than any other day as of late.  Percussion, food, nap, lunch, nap, percussion, supper, bed time.  Praying that he doesn't have to nebulize and that no one in our house gets sick.  Side note: my 6 year old and 4 year old are just coming to realize that not all babies get enzymes and percussion and nebulizing.  They thought all babies got that for a long time.  lol 
Over the past year we have nebulized twice and been on oral antibiotics 3 times.  I really don't know if that is a good year or bad.  I haven't really talked to any other parents or people with cf from Canada.  I read a lot from the states but they do things very differently. 
Health wise I would say he is doing very well considering how much sickness is floating around this year. 
We love him dearly and pray for him to stay as healthy as possible. 
Please pray for my in laws that everyone stays healthy and safe, and that everything goes as smoothly as possible.  That everyone sleeps well.  :)