So....shortly after I stopped nursing we had an appointment with the cf doctors...the first one with the new dr, since the other one went on maternity leave. Ronan had been slowing down in his weight gain. which is to be expected around this age. well at that last appointment he had lost 15g. not really any difference when looking at it in pounds and oz. So we had some changes put into place. We upped the enzymes from half a capsule to one full capsule. I have formula fed both my other kids, but started later. It was also over 3 years ago...I don't remember. I was feeding him 4 to 4 1/2 oz every three hours. He would be a bit fussy after, but a soother would help and then after a bit he would be good. Well they told me he should be eating 6 oz every 3 hours or so or eat more often than he is...cause he sleeps almost through the night. So I was to either/both up the amount that he is drinking each time, up the amount of times he is eating, up the concentration of the formula.
I was very discouraged after that appointment. Not because he had "lost" weight, but because I was not listened to. My kids have all slowed down at this age. They don't care they want him to stay at the 50th percentile. Well none of my kids have been that big....I asked what happens if he doesn't stay at 50....they said he will just deal better with the cf if he grows at that level. I basically said he is doomed and they said no all kids grow different and he has different genes then his siblings....can't be that different. I just felt like I was talking to deaf ears. Don't get me wrong I know that they know a lot about cf, but they also don't know about my kids or Ronan specifically.
Ok I know that we dropped the ball on how much he could/should eat. We upped it slowly within a week up to 5 and half almost 6 oz in a week. He had no problem with it...he seems happier more content....opps. I refuse to concentrate the formula. He has digestive issues....giving him thicker formula can not help...except to give more calories. I didn't not want to deal with a screaming baby that has a sore stomach. The enzymes were no big deal almost easier...but his poops have been a bit odd...I think he is just really getting used to them. He gets more apple sauce with them, so that he likes.
Well Tuesday we go for a weigh in. He gained almost a pound in a week. 13lbs 8oz to 14lbs 5oz....wowza. I have a chunker on my hands. He likes food and to eat.
I had a really hard to not saying I told you so to the them. If I would have gone on what I know and not on guilt from them he would have been on formula full time 2-3 weeks earlier and this no weight gain scare could have been avoided. He showed the signs both the other kids did about not being full and happy but I went with the guilt. GGGRRRR. I did mention something along the lines of well formula could have helped a lot a couple of weeks sooner...they just claimed it must be the more enzymes. My words and opinions fall on deaf ears. So frustrating. I can't wait to go see my family dr on Friday.
No comments:
Post a Comment