Ronan had an appointment this week only because his siblings had an appointment.
They wanted to weigh him too. Last week he was 10lbs 14 oz. This week his is 11lbs 8oz....wow he is doing sooo well. I honestly believe that he is doing so well because of prayer and healing by God. God is good and can do all things. My baby is like every other baby, except my older kids. Zandria only weighed this much at 6 months....Elias weighed this much at 4 months.... he is my biggest...makes me laugh...makes me praise God. They also measured him and he has 2 3/4 inches in just over a month. Still a bit shorter than my other two.
Still no enzymes, but the source cf vitamins and saline are still on the menu for him. He accepts them well and doesn't mind them, unlike a lot of babies with cf from what I understand. Ronan is a star and awesome...praise the Lord.
As I stated my other two had an appointment...to get a sweat test done. A sweat test is how they confirm cf. There are three ways to kind of tell if you have cf. One is a blood test analyzing the proteins in it that may be missing due to the enzymes in the pancreas not working well. This is what the new born screening is looking at.(I think I worded that right if I didn't please correct me)...Second is a DNA testing...they only know what they are looking for. The third is a sweat test. Patient with cf has a lot of salt in their sweat. They don't sweat more than anyone else....just saltier. For example normal sodium leaves is anything under 60. Ronan's first test was 112, his second was 106. Normal procedure is to test siblings so we got that done on Thursday. It took a while of being there, but my mother in law was there to help which was amazing. thank you. Elias like Ronan had to have two samples combined to make it big enough to test. The results got back to us yesterday....the numbers were 18 and 24...don't know which was which...doesn't really matter, we know they don't have it. Praise the Lord again.
From some of the conversations that I have had with the staff dealing with cf is that they really very rarely if ever deal with a family that has the first signs of cf in their 3rd child. Usually and most likely it shows up sooner, in other kids of theirs. They have appreciated the fact that they aren't dealing with teaching us about cf AND teaching about being parents in general. They just have to teach us about cf. Plus I don't think that they have had parents that were shocked yes, but not beyond repair if that makes sense. God is good and put us in a place and with people around us to pray for us and support us. We know that we...He can do all things...and we can get through all things. We have hope and faith and assurance that we felt almost immediately, which they were surprised at.
God is good.
Thank you for your prayers.
February 25, 2012
February 15, 2012
First time fun
Ok so my friend Jen (would put a link here but don't know how and too lazy/impatient to figure it out....she would know i should ask her) has had a blog for a while and does fun things like this....i decided i wanted to try. I have taken this long to try cause i keep thinking who is reading my blog anyway.... oh well Jen will read it and that is ok if she is the only one. so hope this works....:)
A. Age: 31.
B. Bed size: Queen. Just got a new one for christmas....wow...pocket coil is all i have to say
C. Chore that you hate: Floors. vacuuming, sweeping washing, all forms of flooring. My husband vacuums tho that just leaves the rest for me yuck.
D. Dogs: grew up with them...but i grew up on an acreage. I don't think they belong in town.
E. Essential start to your day: going to the bathroom. I have a tiny bladder.
F. Favorite color: I like black. I think it is a colour and so there for I like it.
G. Gold or Silver: Silver.
H. Height: 5’7″ and a bit
I. Instruments you play: Nope and in no way musical. Kind of wish I was but I'm not.
J. Job title: Mom. Hairstylist. Professional procrastinator
K. Kids: Three, 1 girl and 2 boys. Zandria (5), Elias(3), and Ronan( 7 weeks)
L. Live: Saskatoon, Saskatchewan, Canada.
M. Mother’s name: Linda.
N. Nicknames: Ness, Nessa, Veness, and one from when I was in grade 4....Nester, but not many people call me that anymore. Wonder did any of you sing a song when younger called Nester was a donkey? it is a Christmas song about the donkey who carried Mary to Bethlehem.
O. Overnight hospital stays: So far 3. 3 nights when I had Zandria. 3 nights when I had Elias and 2 nights when I had Ronan
P. Pet peeves: I have a lot of pet peeves, but only a couple worth mentioning on here I think. I will start with least...when the wheels are not straight when you park a vehicle, having the lid off the milk jug, and the biggest one of all...parking in front of the school my daughter goes to. The other day a truck parked perfectly so that it took up enough room that at least 2 or 3 other cars could have parked if he would have just moved either back or ahead....drives me insane.
Q. Quote from a movie: “You screw up just this much and I will have you flying a cargo plane full of rubber dog sh*t out of Hong Kong"
R. Right- or left-handed: Right.
S. Siblings: Two brothers- one just over 3 years younger and one 10 years younger.
Tastes you do not like: Raisins and apples cooked in things, oh and fishy tasting fish
U. Underwear: Yes.
V. Vegetable(s) you hate: Green beans, but I am a chicken and haven't tasted some in a while since I was younger.
W. What makes you run late: My husband and kids. I grew up always being a bit early for everything...my dad didn't believe in every being later than 10 minutes early.
X. X-Rays you’ve had: I have only broken 1 bone and that was enough to get me a lot of x-rays.
Y. Yummy food that you make: Roll Kuchken( I am mennonite), a good home made hamburger helper, and brownies
Z. Zoo animal: I have never been to a real zoo, but have seen typically zoo animals in the wild and my favorite is a Hippo. Love them. Also like wart hog and giraffe.
Wanna play along? Add your link in the comments, ’cause I’d love to read it.
A. Age: 31.
B. Bed size: Queen. Just got a new one for christmas....wow...pocket coil is all i have to say
C. Chore that you hate: Floors. vacuuming, sweeping washing, all forms of flooring. My husband vacuums tho that just leaves the rest for me yuck.
D. Dogs: grew up with them...but i grew up on an acreage. I don't think they belong in town.
E. Essential start to your day: going to the bathroom. I have a tiny bladder.
F. Favorite color: I like black. I think it is a colour and so there for I like it.
G. Gold or Silver: Silver.
H. Height: 5’7″ and a bit
I. Instruments you play: Nope and in no way musical. Kind of wish I was but I'm not.
J. Job title: Mom. Hairstylist. Professional procrastinator
K. Kids: Three, 1 girl and 2 boys. Zandria (5), Elias(3), and Ronan( 7 weeks)
L. Live: Saskatoon, Saskatchewan, Canada.
M. Mother’s name: Linda.
N. Nicknames: Ness, Nessa, Veness, and one from when I was in grade 4....Nester, but not many people call me that anymore. Wonder did any of you sing a song when younger called Nester was a donkey? it is a Christmas song about the donkey who carried Mary to Bethlehem.
O. Overnight hospital stays: So far 3. 3 nights when I had Zandria. 3 nights when I had Elias and 2 nights when I had Ronan
P. Pet peeves: I have a lot of pet peeves, but only a couple worth mentioning on here I think. I will start with least...when the wheels are not straight when you park a vehicle, having the lid off the milk jug, and the biggest one of all...parking in front of the school my daughter goes to. The other day a truck parked perfectly so that it took up enough room that at least 2 or 3 other cars could have parked if he would have just moved either back or ahead....drives me insane.
Q. Quote from a movie: “You screw up just this much and I will have you flying a cargo plane full of rubber dog sh*t out of Hong Kong"
R. Right- or left-handed: Right.
S. Siblings: Two brothers- one just over 3 years younger and one 10 years younger.
Tastes you do not like: Raisins and apples cooked in things, oh and fishy tasting fish
U. Underwear: Yes.
V. Vegetable(s) you hate: Green beans, but I am a chicken and haven't tasted some in a while since I was younger.
W. What makes you run late: My husband and kids. I grew up always being a bit early for everything...my dad didn't believe in every being later than 10 minutes early.
X. X-Rays you’ve had: I have only broken 1 bone and that was enough to get me a lot of x-rays.
Y. Yummy food that you make: Roll Kuchken( I am mennonite), a good home made hamburger helper, and brownies
Z. Zoo animal: I have never been to a real zoo, but have seen typically zoo animals in the wild and my favorite is a Hippo. Love them. Also like wart hog and giraffe.
Wanna play along? Add your link in the comments, ’cause I’d love to read it.
February 12, 2012
my chunker
just a quick up date on Ronan
well the last i had updated he was 8 lbs 14 oz at around 4 weeks.
the next week we went to our GP and got weighed there and he was 9 lbs 4 oz.
wow hey.
this past week he got weighed at 6 weeks at the hospital again..... 10 lbs 6 oz.
yikes that's my chunker. cf kids aren't known to gain like this especially without enzymes.
they would like him to gain between 20 - 30 grams a day....he had been gaining 57 grams a day....just about 2 oz a day...that is crazy good. hope he is keeping up with this trend. but kind of afraid that if he keeps it up it will fuel my denial that he will be on enzymes yet...kind of don't think it will happen or really hoping for that, but that thought is denial.
I will keep you posted. he is getting a RSV booster this week and a weigh.
on a side note....I think I am feeding my kid formula that tastes like it was made with water from the ocean...yuck... accidentally got some in my mouth with trying to open the bottle of saline solution. just about puked....don't know how he does it.
well the last i had updated he was 8 lbs 14 oz at around 4 weeks.
the next week we went to our GP and got weighed there and he was 9 lbs 4 oz.
wow hey.
this past week he got weighed at 6 weeks at the hospital again..... 10 lbs 6 oz.
yikes that's my chunker. cf kids aren't known to gain like this especially without enzymes.
they would like him to gain between 20 - 30 grams a day....he had been gaining 57 grams a day....just about 2 oz a day...that is crazy good. hope he is keeping up with this trend. but kind of afraid that if he keeps it up it will fuel my denial that he will be on enzymes yet...kind of don't think it will happen or really hoping for that, but that thought is denial.
I will keep you posted. he is getting a RSV booster this week and a weigh.
on a side note....I think I am feeding my kid formula that tastes like it was made with water from the ocean...yuck... accidentally got some in my mouth with trying to open the bottle of saline solution. just about puked....don't know how he does it.
February 8, 2012
Boys will be boys
i now have 2 boys
but Elias is showing me insight into the male DNA everyday.
i knew that you can tell the difference in genders but wow
let me make a list
* the love of wheels... whether on a car, truck, tractor, train, or bike; if it has a wheel they will like it and find it fascinating. elias even noticed when jers mom got her winter tires changed on her car...the same day she got it done...the kids is crazy about looking at tires on vehicles...i think he could walk around a parking lot and do that all day.
* love of sports. balls, frisbees, bats, and all that kind of thing. yup anything sports.
* pushing anything and everything. he pushes people with his hand with his head with his whole body. just crazy.
* rough...rough with toys... rough with people... rough with everything he touches. no matter how many times you tell him gentle.
* burping. he will force it. he will drink fast to make it happen easier. he will laugh about it. but thankfully we have a rule that it is ok to burp as long as you say excuse me and he always did. but forcing yourself to burp 7 times in a row got put to an end.
* his pants worn low. don't know why, don't know if or where he would have seen this but he likes to wear his pants low. he will even try to push his underwear down a bit...drives me crazy.
* loves his daddy. he will always choose his dad over me. that is ok with me. Jer is more of a cuddler and Elias loves to cuddle and i think has learnt that i am not a cuddler. lol
I know there is more, but can't think of them now... it think the list will still keep growing.
If anyone has anything to add or disagree with me just comment would love to hear your take on it. they fascinate me.
but Elias is showing me insight into the male DNA everyday.
i knew that you can tell the difference in genders but wow
let me make a list
* the love of wheels... whether on a car, truck, tractor, train, or bike; if it has a wheel they will like it and find it fascinating. elias even noticed when jers mom got her winter tires changed on her car...the same day she got it done...the kids is crazy about looking at tires on vehicles...i think he could walk around a parking lot and do that all day.
* love of sports. balls, frisbees, bats, and all that kind of thing. yup anything sports.
* pushing anything and everything. he pushes people with his hand with his head with his whole body. just crazy.
* rough...rough with toys... rough with people... rough with everything he touches. no matter how many times you tell him gentle.
* burping. he will force it. he will drink fast to make it happen easier. he will laugh about it. but thankfully we have a rule that it is ok to burp as long as you say excuse me and he always did. but forcing yourself to burp 7 times in a row got put to an end.
* his pants worn low. don't know why, don't know if or where he would have seen this but he likes to wear his pants low. he will even try to push his underwear down a bit...drives me crazy.
* loves his daddy. he will always choose his dad over me. that is ok with me. Jer is more of a cuddler and Elias loves to cuddle and i think has learnt that i am not a cuddler. lol
I know there is more, but can't think of them now... it think the list will still keep growing.
If anyone has anything to add or disagree with me just comment would love to hear your take on it. they fascinate me.
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