February 25, 2012

Update

Ronan had an appointment this week only because his siblings had an appointment.
They wanted to weigh him too. Last week he was 10lbs 14 oz. This week his is 11lbs 8oz....wow he is doing sooo well. I honestly believe that he is doing so well because of prayer and healing by God. God is good and can do all things. My baby is like every other baby, except my older kids. Zandria only weighed this much at 6 months....Elias weighed this much at 4 months.... he is my biggest...makes me laugh...makes me praise God. They also measured him and he has 2 3/4 inches in just over a month. Still a bit shorter than my other two.
Still no enzymes, but the source cf vitamins and saline are still on the menu for him. He accepts them well and doesn't mind them, unlike a lot of babies with cf from what I understand. Ronan is a star and awesome...praise the Lord.

As I stated my other two had an appointment...to get a sweat test done. A sweat test is how they confirm cf. There are three ways to kind of tell if you have cf. One is a blood test analyzing the proteins in it that may be missing due to the enzymes in the pancreas not working well. This is what the new born screening is looking at.(I think I worded that right if I didn't please correct me)...Second is a DNA testing...they only know what they are looking for. The third is a sweat test. Patient with cf has a lot of salt in their sweat. They don't sweat more than anyone else....just saltier. For example normal sodium leaves is anything under 60. Ronan's first test was 112, his second was 106. Normal procedure is to test siblings so we got that done on Thursday. It took a while of being there, but my mother in law was there to help which was amazing. thank you. Elias like Ronan had to have two samples combined to make it big enough to test. The results got back to us yesterday....the numbers were 18 and 24...don't know which was which...doesn't really matter, we know they don't have it. Praise the Lord again.

From some of the conversations that I have had with the staff dealing with cf is that they really very rarely if ever deal with a family that has the first signs of cf in their 3rd child. Usually and most likely it shows up sooner, in other kids of theirs. They have appreciated the fact that they aren't dealing with teaching us about cf AND teaching about being parents in general. They just have to teach us about cf. Plus I don't think that they have had parents that were shocked yes, but not beyond repair if that makes sense. God is good and put us in a place and with people around us to pray for us and support us. We know that we...He can do all things...and we can get through all things. We have hope and faith and assurance that we felt almost immediately, which they were surprised at.

God is good.
Thank you for your prayers.

2 comments:

Anonymous said...

I am joining you in your gratitude! And what a witness of God's goodness you can be to those medical professionals that you deal with. It's good that you are recording these moments because they will be a source of comfort in the tough moments--with Ronan's CF and the other things life throws at you.

Blessings!

Q&L said...

Very well said, trusting and your faith in God, pray it continues and your kids see you guys acting out ur faith this way. ((hugs)) love you Ness.